It’s Craniofacial Awareness Month! So, I’ve lived how many months and never really knew that this existed? Alas, now I do and so do you! Apert Syndrome is included in the craniofacial family because two of its signs/symptoms are craniosynostosis (fused sutures) and apoptosis ( inset eye sockets that make the eyes seem to pop … Continue reading More Love, Less Fear →

Maggie can lift her arms above her shoulders. Thank you for your prayers! I had written previously about my concern that she had shoulder joint issues similar to that of her peers with Apert and that she would have restricted movement. It turns out, after seeing a physical therapist that she has the ability, just … Continue reading Put your hands in the air… →